The Global LSD Collaborative is Heading to WORLDSymposium 2025!
The Global LSD Collaborative is excited to be attending WORLDSymposium 2025 in San Diego this February! This annual event is one of the most important gatherings for the lysosomal storage disease (LSD) community, bringing together leading researchers, clinicians, advocacy groups, and industry partners to share the latest advancements in treatment, care, and policy.
This year, we’re proud to be presenting a poster that showcases the power of collaboration in the rare disease space:
📌 “The Global LSD Collaborative: Uniting Advocacy to Elevate Care for Lysosomal Communities Worldwide”
Our poster highlights the importance of global cooperation in addressing the challenges faced by LSD patients and their families. By bringing together advocacy organizations, we aim to share best practices, drive policy change, and improve access to care. We believe that a united approach is key to ensuring that every LSD community has the resources and support they need—regardless of where they are in the world.
Strengthening Our Collaborative Efforts
Beyond our poster presentation, WORLDSymposium 2025 will be an important opportunity for us to further solidify our objectives for the year ahead. We are hosting our second official meeting with our member organizations and industry partners, where we will:
✅ Outline our key objectives for 2025 and discuss how we can maximize our impact across LSD communities
✅ Strengthen collaboration between patient advocacy groups and industry to ensure that patient needs remain at the forefront
✅ Identify shared priorities that will drive tangible improvements in research, care, and support for those affected by LSDs
This meeting will allow us to build on the momentum we’ve created and ensure that the voices of patients and families continue to shape the future of LSD care and advocacy.
Looking Ahead
As we prepare for WORLDSymposium, we remain committed to fostering collaboration, driving meaningful change, and ensuring that no LSD community is left behind. We are excited to share our insights, connect with fellow advocates, and work together to advance care for all individuals affected by LSDs.
If you’re attending WORLDSymposium 2025, we’d love to connect and discuss ways to work together! Let’s continue to strengthen our collective voice and drive progress for the LSD community.
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