Organisation name

Global GM1 and GM2 Alliance

Abbreviated name

GGGA

Condition

GM1 and GM2 gangliosidosis

Together, the GGGA is committed to ensuring that the GM1 and GM2 community has access to information, study updates and a unified support network. By working globally, the GGGA can achieve its mission and bringing health equity to all families.

We want all families impacted by GM1 and GM2 to have access to information about the diseases so that they are empowered to manage and provide care. We want to provide a global support network for the GM1 and GM2 community so that they are able to support each other as they navigate the diseases. We aim to ensure that the GM1 and GM2 community are involved in the latest research and studies into the diseases and are always kept update.

Supporting the global GM1 and GM2 community

Objective

The GGGA ensures that families have access to all relevant information at diagnosis.

Support

The GGGA world collaboratively to make sure that its members all work closely together.

Research

The GGGA supports the research into treatments for GM1 and GM2.

A global community

Our members