The Global LSD Collaborative is Now on LinkedIn!

We’re thrilled to announce that the Global LSD Collaborative now has an official LinkedIn page! 🎉

🔗 Follow us here: Global LSD Collaborative LinkedIn

The Global LSD Collaborative was established to bring together advocacy organizations from around the world to support individuals and families affected by lysosomal storage diseases (LSDs). By working together, we aim to advance standards of care, promote joint advocacy efforts, and share best practices to ensure that no community impacted by an LSD feels isolated or unheard.

Why LinkedIn?

LinkedIn provides a great opportunity for us to connect with the wider rare disease, biotech, and advocacy communities, as well as with researchers, clinicians, and industry leaders. We want to use this space to:

✅ Share updates on the Collaborative’s initiatives and achievements
✅ Highlight the work being done by our member organizations
✅ Provide insights into key policy, research, and advocacy discussions
✅ Strengthen relationships between patient groups, scientists, and industry partners
✅ Encourage collaboration across borders to drive progress in LSD care and research

Join Us in Driving Change

The strength of our Collaborative lies in the power of connection and shared knowledge. By following our LinkedIn page, you’ll stay up to date on the latest efforts to improve the lives of those affected by LSDs. We invite advocacy organizations, researchers, clinicians, industry partners, and all those invested in rare diseases to join us on this journey.

💙 Let’s work together to make a difference. Follow us today and help spread the word!

📢 Follow us here: Global LSD Collaborative LinkedIn

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